I was driving to work on Wednesday listening to KRJ a.m. and Mitch was talking with Jackie and Bender from Kiss 106.1 about their telethon to raise money for Children's Hospital for the uninsured children's fund...After the interview I switched over to 106.1 and they were reading names of people who were giving money through the telethon to Children's and I heard Bender say, "...and Tiffany from Monroe just gave $ in the honor of Cash, who is currently a patient at Children's." I figured there weren't many 'Cash's' at Children's and I only know a few families in Monroe so I called my cousin when I was driving home and sure enough, Tiffany is her sister-in-law. My investigative skills are amazing...:-) I also had a good friend hear the same thing on the radio and as I and found out the next day, one of my teachers also gave during the telethon. 'Cancer', consider your awareness raised!
I have been overwhelmed with the support we've received and at the same time have been changed forever about how I feel about cancer and those who are impacted. We are ordering buttons and I'm going to get a t-shirt that says, "Cancer Sucks" - because it really does and I feel that more than I ever did before.
Today I took Cash in for two appointments at Children's, one to draw blood to check his levels and the other was to meet with our excellent nurse practitioner to talk about any recent challenges we've had...we're still struggling to get Cash to take his meds and will most likely be looking at having a nutritional tube put in. While I'm not excited about another 'tube', this will ensure he's getting the nutrition he needs and we can put the meds in the tube as well, bypassing his gag reflex - the meds must that taste like soap and motor oil to warrant such a reflex...Zion's Assistant Principal talks about castor oil from back in the day, I wonder if it's from the same company...
I'm still very positive and will continue to fight - Cash has decided the crib is no longer a place for him and has taken residence with me on the couch the past few nights. He'll wake up many times just to reach over and see if I'm still there, then drift back to sleep. As he drifts back to sleep I quietly pray for him once again.