We made it home from Children's yesterday afternoon. I passed all of my 'training' and this morning was my first real attempt (without nurses) at changing Cash's Hickman caps, flushing the lines, and giving him a shot. He wasn't too keen on the shot and he's definitely on to us...we have to crush the meds he needs and mask them in various foods but no matter what I try, he turns his head and says "No!" Today my mom and Auntie Geri came down to help us for a few days and with Wendi's help they managed to get his meds down so that was great.
I realize now why the doctors and nurses don't tell you what we were in store for at the beginning...slowly over the past two weeks we've learned about all of the things we have to do outside of the hospital. Honestly I don't think we would have been in the space to even receive all of the information but now after one round of chemo we're understanding what will need to take place. In between chemo treatments we have many visits to the hospital for labs, visits, tests, etc. This morning it took nearly an hour to do the work mentioned above (cap change, line flush, etc.) Our prayer is that his levels rebound quickly and he's stays healthy which will keep us out of the hospital for any added days.
Both my work and Wendi's have been incredible - Wendi's co-workers donated over 150 hours of time to her to take off during all of our visits to the hospital and Zion has been very generous with my time off. Today at work at the end of a meeting my director stopped and for the next 5 minutes we simply took time to say Thank You to God for everything He's done, everything He continues to do, and everything He will do. I have been too busy petitioning God that it was great to stop and thank Him.
Cash has been much better since we've gotten home. He still throws up occasionally but with Jack Jr. running around swinging his swords and our dog, Paco, Cash is much more engaged that staring at Wendi and I in the hospital. Our blessings have been many and today Jeremy bought us another small freezer to store the amazing food people have been giving us. It's very nice to not worry about dinner after recovering from 5 days in the hospital.
The support we've received in these few short weeks has been nothing short of incredible. Tonight my prayer will be one of thankgiving!